August 24 - Dr. Burkhead and Surgery
I went to see Dr. Burkhead Tuesday for my final pre-surgery visit. I was planning on taking the titanium plate out, in hopes that it would alleviate some of my Thoracic Outlet Syndrome symptoms. I was skeptical though, seems Burkhead wanted to do a clavicle resection as well, and if you’ve seen my x-rays, that is way to much bone to take out. I’ve read anything more than 1 or 2cm being removed can cause MAJOR complications. And I really don’t want to come out any worse this time.
So I asked some questions and told him about my reservations, i also told him straight up that I didn’t want to and wouldn’t let him remove the end of my clavicle. So he decides to do an x-ray, and low and behold, on a light exposure, there are very promising signs of union.
I literally couldn’t fucking believe it.
I don’t like to get my hopes ups, but the x-rays DO look promising. See for yourself.
So after getting the good news, I agreed to let him remove the plate, and shave off the very tip of the lateralof my collarbone, as the union has made the top part stick out in a spiky fashion.
I literally felt hopefull for the first time in almost 9 months. It was nice. So we got into talking about possible treatments for the T.O.S., and he starts talking about releasing my scalene muscles, or my pectoralis minor muscles from the bones. Now I’m amazed by modern medicine, but it’s hard for me to wrap my head around detaching muscles from bone. It seems altering your anatomy that much just couldn’t possibly be good for you. However, it seems the muscle scars back to the bone, allowing the muscle to "stretch" and allow for more space in your thoracic outlet. Good thing I took my dad with me.
He’s had a shoulder injury now for several years, with pretty severe nerve damage. He’s also develop R.S.D., , a VERY debilitating nerve disease. If anyone knows his shit, it’s my dad. Funny thing, my Grandfather had Thoracic Outlet Syndrome as well. They took out his first rib to allow for more space. Four years later his lung collapses, and they discover cancer living in the scar tissue of his rib and all down his surgical scar. It eventually spread to his brain and killed him.
And so now my dad has T.O.S. as well, thanks to his work-related injury. He had some kind of nerve cutting procedure done (for obvious reasons he didn’t opt to remove a rib, something ill never do either). Well, nerves are funny things, and despite what doctors and books tell you, they DO grow back, albeit very slowly, only they don’t work right when they do. Imagine your nerves as the electrical wiring in a robot, and someone crosses all the wires from your arm to your brain. From you’re shoulder down, you’ll never work correctly again. Symptoms include, pain, aching, tingling, numbness, muscle atrophy, and wasting.
And so now I have Thoracic Outlet Syndrome as well. Woo Hoo!
* Insert sarcasm here
So now I have to do as much research as I can on active surgical pectoralis minor muscle releases. Shit, that’s a mouthful.
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3 Comments:
your blog was a big help to me over the past 8 days... inspired me to write my story. Thank you, Matt.
http://www.anniebarryzed.com/accident/
Hi Matthew,
I've lived with pain ever since i had open reduction surgery on my clavicle. It took me years to be able to even get off the couch for a while and away from the heating pad, so not left with much quality of life. I argue the plate should come out as i have a huge swelling at the base of my neck and all the surgeons claim i'm not allergic to the titanium plate and it doesn't have a thing to do with it. One bright neruologist used botox injections into the surrounding muscles and it felt like she was putting that little insulin syringe into "raw meat". I've had my surgery done by the Carolina Panthers shouldr/elbow spealist, been seen later by the NYGiants team surgeon and the Atlanta Brave/Hawks elbow/shoulder specialist and while they all agree he did amazing work(the Carolina surgeon) why do i still have so much pain??? I'm trying to talk them into taking the plate out but none of them will attempt it and say i need to see the original surgeon, whom doesn't see the need to remove it and only says to stick with a pain specialist and stay on the narcotics. Not much of a life. Did you have your plate out and did it make any difference in your pain levels?? Appreciate any light you may be able to shed on the subject. Thanks Lori
great info. THANK YOU. My symptoms are very similar and my doc is a jerk. Am awaiting referral info. How has your case progressed since? I am a fellow musician-bass player-prog rock is my favourite stuff. We could start a band called the The Nasty Clavicles!
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